Useful links

These links may help to increase your knowledge and understanding of various areas relevant to being a volunteer on a Newman Trust holiday.

Please report any broken or outdated links to Nick White via our Contact Us page - thank you.
The Newman Holiday Trust is not responsible for the content of external internet sites.

Please note that as a completely voluntary organisation we do not have the capacity to accept correspondence from organisations who want to be included in these lists!

 

MEDICAL

General medical advice

First Aid

MEDICAL CONDITIONS

Scroll further down the page for a more comprehensive list of links.

Social, Emotional and Behavioural Difficulties

Disabilities & Special needs

HEALTH AND SAFETY ISSUES

Signing and Communication

Songs

To hear individual songs, you could also try Google, YouTube or Spotify.

ASSEMBLIES

FUNDRAISING

VOLUNTEERING AWARDS

 

DISABILITIES, CONDITIONS AND IMPAIRMENTS

Below is a list of links to the main UK organisations specialising in disability in general as well as specific conditions and impairments.

Bear in mind that it can be dangerous to a child's health and safety to apply general information found on a website - even a reputable site. While background reading can be extremely useful, you should check with experts who know the child's particular condition and context - school nurse, therapists, GP, etc. For volunteers at the Newman Trust, specific information particular to the child will be provided at the very start of the holiday, before or during training.

 

TRUSTED SOURCES OF INFORMATION ON CONDITIONS AND IMPAIRMENTS

Scope’s A-Z of impairment organisations

Mencap - Learning disability and conditions

The Brain Charity - A-Z of neurological conditions

SENteacher.org's list of specialist sites (left-hand column)

CCLD briefing packs - these packs, produced by the SSATrust, provide initial information about conditions which often overlap with others to form the complex make up of children with complex learning difficulties and disabilities (CLDD). The topics include: foetal alcohol spectrum disorder (FASD), attachment disorder, premature birth, rare chromosomal disorders, attention deficit hyperactivity disorder (ADHD), mental health, sensory impairment, fragile X syndrome, effects of smoking and drug use during pregnancy.

If you just need a straightforward definition and summary of a condition or impairment, try:

NHS Choices - official NHS website, including A-Z of conditions and treatments

Patient UK - website created by (and used by) British GPs

Some other reputable health websites include:

Healthtalk - website where people share experiences of health issues

Clinical Knowledge Summaries - technical information from NICE on how GPs review current evidence on treatments

Lab Tests Online - explains lab tests, what to expect, what results mean

 

GENERAL DISABILITY / SPECIAL NEEDS ORGANISATIONS

BIBIC

BILD - British Institute of Learning Disabilities

Communicate-ed

Contact A Family - for families with disabled children

Council for Disabled Children

Disabilities Trust

Disability Now - for, about and by disabled people

Disability Rights UK

Mencap - the voice of learning disability

NASEN - National Association for Special Educational Needs

PMLD Network

Scope

UCL Centre for Inclusive Education from the Institute for Education, UCL (formerly SENJIT)

WellChild - national charity for seriously ill children

 

A-Z OF CONDITIONS AND IMPAIRMENTS WITH LINKS TO SUPPORT ORGANISATIONS

A

Allergies

Allergy UK

BSACI - British Society for Allergy and Clinical Immunology

 

Attention Deficit Hyperactivity Disorder (ADHD) / ADD

ADDISS - National Attention Deficit Disorder Information and Support Service

 

Anxiety disorders - panic attacks, phobias, obsessive compulsive disorders

No Panic

OCD Action

Phobics Society

 

Asthma

Asthma UK

British Lung Foundation

 

Attachment Disorder

Attachment Lead Network

Institute of Recovery from Childhood Trauma (IRCT)

Nurture Group Network

TouchBase (formerly The Yellow Kite)

 

Autism

National Autistic Society

Ambitious About Autism

Autism Independent UK

Autism Education Trust

Gina Davies Autism Centre

 

B

Blood / bleeding disorders

Haemophilia Society

 

Blindness / Visual Impairments

RNIB - Royal National Institute of Blind People

Action for Blind People

 

Brain injuries and neurological conditions

The Children's Trust

Brain Injury Hub - from The Children's Trust

BIBIC

The Brain Tumour Charity

Cerebra - for children with brain conditions

Headway - the Brain Injury Association

HemiHelp - for children and young people with hemiplegia

Shine

 

Brittle Bones (Osteogenesis Imperfecta)

Brittle Bone Society

 

C

Cerebral Palsy

CerebralPalsy.org.uk

Pace Children's Charity

Scope

 

Chromosome Disorders - See also: XXYY Syndrome

Axys - Association for X and Y Variations

Unique - understanding chromosome disorders

 

Cleft Lip / Cleft Palate

Cleft Lip and Palate Association (CLAPA)

 

Crohn's Disease and Colitis

Crohn's and Colitis UK

 

Communication issues

AACknowledge - Augmentative and Alternative Communication

Ace Centre

Afasic

​Communication Matters

Communication Trust

​Elklan

I CAN

Intensive Interaction

PECS - Picture Exchange Communication System

Talking Point - Speech, Language and Communication Framework (SLCF) from The Communication Trust

 

Cystic Fibrosis

Cystic Fibrosis Trust

 

D

Dandy-Walker Syndrome

Dandy-Walker Alliance (US organisation)

 

Deafness / Hearing Impairments

British Association of Teachers of the Deaf

British Deaf Association

British Sign Language

HearFirst

National Deaf Children’s Society

Signature - excellence in communicating with deaf people

 

Diabetes

Diabetes UK

 

DiGeorge Syndrome, VCFS and 22q11.2 deletion

Max Appeal

 

Down’s syndrome

Down’s Syndrome Association

 

Dyslexia

The Dyslexia SpLD Trust

British Dyslexia Association

The Dyslexia Association

Dyslexia Action

 

Dysphagia / Swallowing difficulties

Dysphagia (swallowing problems) - from NHS Choices

Dysphagia.org.uk

Swallowing Difficulties

 

Dyspraxia and Developmental Co-ordination Disorder

Dyspraxia Foundation

 

E

Eczema

National Eczema Society

(See also: Skin conditions)

 

Epilepsy

Epilepsy Action

Epilepsy Society

 

Eye conditions

RNIB A-Z list of eye conditions

 

F

Foetal Alcohol Syndrome

NOFAS-UK (The National Organisation for Foetal Alcohol Syndrome)

 

Fragile X Syndrome

The Fragile X Society

 

G

Global Development Delay

Mencap - definition and advice

BILD - British Institute of Learning Disabilities

Foundation for People with Learning Disabilities - part of the Mental Health Foundation

Understood - for learning and attention issues

 

H

Heart conditions

British Heart Foundation

 

Hemiplegia

HemiHelp - for children and young people with hemiplegia

 

Hydrocephalus

(See: Brain injuries and neurological conditions)

 

I

 

J

 

K

Kidney conditions

National Kidney Federation

 

L

Learning Disabilities

BILD - British Institute for Learning Disabilities

Foundation for People with Learning Disabilities - part of the Mental Health Foundation

Mencap

 

Liver conditions

British Liver Trust

 

Lower limb / foot conditions - including talipes / club foot

Steps

 

M

Mental Health and Wellbeing

Mental Health Foundation

Mind

Rethink Mental Illness

SANE

Young Minds

 

Mulitiple Sclerosis

Multiple Sclerosis Society

Multiple Sclerosis Trust

 

Muscular Dystrophy

Muscular Dystrophy UK

 

N

Neurofibromatosis

The Neuro Foundation

 

O

 

P

Phelan-McDermid Syndrome

Phelan-McDermid Syndrome Foundation UK

 

Pituitary disorders

Pituitary Foundation

 

Prader-Willi Syndrome

PWSA - Prader-Willi Syndrome Association UK

 

Q

 

R

Rare chromosome disorders

Unique - understanding chromosome disorders

 

Restricted growth (Dwarfism)

Restricted Growth Association

 

S

Scoliosis

Scoliosis Association (UK)

 

Skin conditions

British Skin Foundation

(See also: Eczema)

 

Spina Bifida and Hydrocephalus

Shine

 

Spinal injuries

Spinal Injuries Association - supporting everyone affected by spinal cord injury

 

Strokes

Stroke Association - including childhood strokes

 

T

Thyroid conditions

British Thyroid Foundation

Thyroid UK

You and your hormones - education resource from the Society for Endocrinologyon glands, hormones and endocrine conditions

 

Tourette syndrome / Tourette's / TS

Tourettes Action

 
U

Undiagnosed conditions

SWAN - Syndromes Without A Name

 

Upper limb deficiency

Reach

 

V

 

W

Williams Syndrome

Williams Syndrome Foundation

 

X

XXYY Syndrome - See also: Chromosome Disorders

XXYY Project - from Axys

48 XXYY

 

Y

 

Z


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